Not Alone – Disease Information and Resources
A Helpful Realization
I find it very helpful to realize that I’m not alone in dealing with the diseases, losses and challenges that have affected my life. I realize there are other people out there who have dealt with or who are currently dealing with the same or similar disease or physical loss issues I have encountered. Just knowing that others have faced, endured and lived through similar experiences gives me hope.
Discovering Information and Support
In addition to doctors and medical professionals, there are various sources of information online that have provided support and help to better understand specific diseases. Some of these sources can also help people connect with others who are dealing with the same issues they are facing. Additionally, some websites such as, The Michael J. Fox Foundation For Parkinson’s Research for example, may shed light on how knowledge and treatments are progressing for specific diseases.
You are not Alone – A Personal Story
Video below from PBS
Online Information and Resources
I continually discover resources that give information to help me better understand and deal with the diseases and physical challenges that have touched my life. While some of these resources are already shown as links in the other, disease specific pages of this website, I also wanted to include some of my findings here.
I am including links below to some of the resources and information I have found personally helpful.
Alzheimer’s Disease and Dementia
Alzheimer’s Financial Guide / Bankrate.com
Alzheimer’s Foundation of America
Vascular Contributions to Cognitive Impairment and Dementia
Autoimmune Disease
American Autoimmune Related Diseases Association, Inc.
Cancer
Cancer.Net – Finding Support and Information
Cancer Treatment Centers of America
Apps for cancer
Parkinson’s Disease
National Institute of Neurological Disorders and Stroke
Resources For Caregivers
Cancer Etiquette For Caregivers
For Caregivers – Cancer Treatment Centers of America
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